Tuesday 2 April 2013

Waiting...

I really have not had long to wait for my treatment.
Two weeks, is all.

The terrifying part is the speed with which my cancer is fastening its hold on me.

In just two weeks, I've had 10l of fluid drained from my abdomen. The cancer has already thickened my peritoneum to the extent that the latest draining was excruciating.
They had to restrain me to get the drain in.
I needed morphine to tolerate the drain.
I had so much gas and air for the removal of the drain, that I was as high as a kite, and yet I still screamed.

It is safe to say that I will not be allowing any invasive procedures on my body, other than chemo, for a good long while.  That being the case, I declined my doctor's request to have an endoscopy to find the cause of the blood I am regurgitating. I have doubled another drug which will deal with the symptoms.
My GP stated that he would be sensitive about hospital admissions. What a lovely man.

So, I sit here, looking 8 months pregnant, with an abdomen as tight as a drum. I'm taking strong painkillers and drugs to suppress cold sweats which drench me regardless of the temperature. I can eat tiny amounts at one time as there is no room in my stomach for more than a teacupful at a time. The fluid that is filling my abdomen is coming from the protein bit of my blood that builds my body so I am getting a little weaker. I seem to crave salty and savoury foods so I am indulging in them.
Looks like my Easter eggs are safe for a while yet.

Chemo starts on Thursday. Then I can start teaching those cancer cells what for.

I'm not writing this to get sympathy. I've had and got plenty...
I'm not writing to shock or revolt. This is how it is...
I'm writing this as part of my life...
This is my story.
One day, a long time from now, I truly hope - it will be my history.


6 comments:

  1. I think it is very brave to keep writing about what you are going through. I'm a bit confused as to why they can't put some sort of permanent stent in to drain the fluid as required rather than put you through the insertion of the drain every time. But I am sure they know what they're doing. As ever, we are all on your side and ready with all the virtual hugs you can take.
    x

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  2. I think the issue about the drain is one of potential infection. I'm going to put up with the swelling at present.

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  3. Thank you for being brave enough to share all that is happening, I think about You and what you're facing and keep wanting to say..."I'm here for you"..

    Scrabble will resume too..just been hectic with visitor's and Easter...

    I hope that next time they can numb the area and you can be free from agony.

    You are still Amazing Ali...keep writing...

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  4. You're more than Amazing Ali... you're gutsy and honest and we thank you for it!

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  5. Glad you avoided hospital admission today, hope you're a little more comfortable. You're a strong lady Ali...so glad you had a nice Easter with your family - Love @sparkledoris

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  6. It is good say how it is ..... It is good if you are experiencing challenges to feel connected and to see how others deal with 'how it is'

    Blogs are great for this, I was diagnosed with Addison's disease 12 years ago I was desperate for the this is how it is

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